Tuesday, August 30, 2016

My Sports Tees And Miscellaneous Caps, Part 7

With all that's going on related to my cancer, things are kinda tough, including with this blog. But last night I finally got a picture of EVERY baseball cap I own! (For now. Some are quite old and have sweat stains so it may be time for them to go, and there's a Phillies cap or two I'd like to buy if they're available/the right price.)

And so I present the final batch of caps...followed by some cool throwback t-shirts I got recently...




OMG! A 76ers cap! And the 1997 Flyers Eastern Conference Championship. That was a fun ride. Until it wasn't. #chokingsituation


Baltimore Orioles giveaway from a game in 2002, some time when I gave money to Human Rights Campaign (something I'll never do again), and from the golden days of Outsports.

These tees are from Shibe Vintage Sports, and I love them! There are a few more I hope to get soon.


Except for the above, which also comes in red for the Vet's other main tenant, so far I've got some long-gone teams...


Note: this pic is from the Shibe website. My pic turned out a brown color(????) The Bell, from something called the World Football League, looked like a success story when they initially drew over 50,000 to JFK Stadium. Turns out they gave most of the tickets away. It killed the team. The WFL soon followed.


The Star were able to play at the Vet because USFL played their games in the spring. And they won a chapmionship! (See, Eagles, it IS possible!) Then this happened. The Stars were forced to move to Baltimore until the league was killed. #NeverTrump


The Blazers played here for one year before moving. They were from the WHA, the league that the NHL eventually took some teams from. Not the Blazers, of course. The NHL did get a team from Edmonton. Had a kid named Gretzky. Whatever happened to him?


Before Oakland, before Kansas City, they were the Philadelphia Athletics. And look at this list of championships won while they were here (before things went sour and they...you get the idea.)

World Series titles: 1910 1911 1913 1929 1930
AL Pennants: 1902 1905 1910 1911 1913 1914 1929 1930 1931

Phillies? Any comment?


The Firebirds were a minor league hockey team that played at the long-gone Civic Center (fun fact: the building's gone but Civic Center Boulevard keeps the name to this day!) I was at their final home game in 1979 before they moved to Syracuse. Someone outside handed out fliers asking fans to chant "Keep the Birds in Philly!" midway through the 2nd period. The result: dead silence. #ByeFelicia

Sunday, August 14, 2016

Not good news on the cancer front

Again, if you see weird typos and such, let me know so I can fix them.

So in my last update I talked about the aftermath of the MRI I had at the end of April. During May I went through a brief round of radiation. I had 10 total treatments that only lasted maybe 10 to 15 minutes each After that I started the next chemo treatment, this medicine being called irinotecan. This was administered via IV (and it took about THREE hours each time) in a regimen spread out over a few weeks. It was done on Wednesdays. First they did it on back-to-back Wednesdays, then they'd skip a week, then they would repeat the process. The day after each second Wed. treatment I got an injection of a medication designed to keep my white blood cell count high.

Luckily, unlike the previous chemo, this one did not cause my legs or feet to swell. In fact, the previous swelling went away thanks to getting off the Avastin as well as changing my diet to reduce my salt intake. However, in the last 2 or 3 weeks or so my diet has very much gone to pot. I've been eating more junk food and red meat so my weight has come up a little bit; also, I think my feet are swelling a little bit so I really have to get control of what I'm eating again. I'm due to see the nephrologist in about 2 weeks. There shouldn't be any issue with my kidneys, though.

Which brings us to my latest MRI on Wednesday. I saw my chemo oncologist Friday. He had the results and they were not good. The area which showed the cancer cells in the last MRI still shows cancer cells. And he said there are more cells growing in kind of a ring pattern around that area.

He spoke to my radiation oncologist, who said they really couldn't do any more radiation because of the two previous rounds of radiation; there's only so much radiation that they can do to the brain, and it doesn't seem to be helping anyway even if they could do more. They also said they feel surgery isn't really an option since I've already had two in that area, though I have the option to a talk to a neurosurgeon about it.

My chemo oncologist said he reached out to Penn Medicine to the doctor I saw previously to see if I qualified for the clinical trial.(By the way, I did not qualify for that particular trial based on my genetic testing.) So he sent her an email to see if there were any other trials going on; he has not heard back from her yet.

He also suggested I should contact Duke University because they have a lot of activity as far as trials for treatments of glioblastoma. CBS News did a report on one a while back that showed great promise. I shared it on Facebook at the time. I don't know if I can get into the trial or any of the logistics as far as how many times/how often would I have to go down there and for how long.

In the meantime my chemo oncologist said there are two more chemo drugs I can try, but they don't have much of a track record for treating glioblastoma. One that seems to be slightly more promising would be in pill form given every six weeks.The other would be given intravenously every 3 weeks. My thought is right now to start on the pill form of the chemo and then try and see what clinical trials are available either here or at Duke in the meantime, but I have to let the doctor know of my decision when I see him on the 26th of this month.

I had a suspicion that it was not going to be good news just because some of my issues have seemed to worsen recently. My left leg has been still kind of weaker, dragging my foot when I walk. The forefinger and thumb on my left hand are still giving me problems: gripping things, typing and holding my phone, getting out of chairs or using a toilet in the restroom --all of this has really become frustrating. To hopefully alleviate of this, my doctor increased the dose on the steriod Decadron (it had been stopped for a while and then I went back on it but at a lower dosage). So incompetent customer service people, Jehovah's Witnesses knocking at the door, ignorant drivers who don't like stopping for pedestrians with the right of way -- get ready for more ROID RAGE!